Development Plan 2017-2021 - Centre de recherche ...
←
→
Transcription du contenu de la page
Si votre navigateur ne rend pas la page correctement, lisez s'il vous plaît le contenu de la page ci-dessous
Development Plan Short Version 2017-2021 Centre for Interdisciplinary Research in Rehabilitation of Greater Montreal (CRIR) Margarita Lypiridou, 2014 Scientific Directors Eva Kehayia, Ph.D. Bonnie R. Swaine, PT, Ph.D. December 1st 2016
RENEWAL FORM Infrastructure Funding for University Research Centres and Institutes with a psychosocial focus on health-society, rehabilitation and social integration SHORT VERSION Date of submission: December 1st, 2016
SECTION A : LE CENTRE OU L’INSTITUT Sa mission, ses caractéristiques, son fonctionnement, ses objectifs et ses perspectives de développement A.1 Le centre de recherche (maximum : 5 pages) A.1.1 Présentation générale du centre A.1.2 Forces et défis du centre de recherche A.1.3 Relations avec le milieu, collaborations A.1.4 Retombées nationales et internationales de la recherche A.1.5 Réponses aux questions soulevées et suivi des recommandations de la dernière visite A.2 Gestion et structure organisationnelle du centre (maximum : 2 pages + 2 tableaux) A.2.1 Tableau résumé des effectifs A.2.2 Organigramme(s) A.2.3 Opérationnalisation des liens avec les partenaires universitaire, l’établissement d’accueil et fondation(s) A.3 Perspectives stratégiques de développement (maximum : 2 pages) A.3.1 Objectifs et perspectives stratégiques de développement A.4 Productivité scientifique du centre A.4.1 Résumé des éléments majeurs de performance (maximum : 1 page) A.4.2 a) Tableau résumé des activités scientifiques (rapport extrait du registre) b) Tableau résumé des octrois reconnus par axe (rapport extrait du registre) A.4.3 Tableau résumé du nombre de publications, rapports d’experts, mémoires, demandes de brevets et brevets accordés (tableau produit par le centre) A.4.4 Tableau résumé des conférences et congrès organisés par le centre (rapport produit par le centre) A 4.5 Résumé des activités de soutien à la diffusion scientifique, de transfert et de services à la communauté (maximum : 2 pages) A.4.6 Résumé des activités de recherche et de formation en réponse à des besoins sociaux et problématiques sociétales (maximum : 2 pages) SECTION B LES AXES DE RECHERCHE Réalisations, objectifs et performances Note : pour la présentation, regrouper les sections B.1 à B.3 pour chacun des axes Par programmation de recherche : Un centre de recherche ayant un nombre restreint d’axes et dont plusieurs activités de recherche se chevauchent peut présenter cette section pour l’ensemble des activités du centre. Ainsi, sous approbation du FRQS, le centre pourra présenter cette section selon une programmation de recherche plutôt que par axe de recherche. B.1 Présentation de l'axe / de la programmation de recherche (maximum 3 pages) B.1.1 Positionnement stratégique B.1.2 Programme de recherche et de formation B.1.3 Structure organisationnelle et relations avec le milieu B.1.4 Bilan des performances B.2 Perspectives stratégiques de développement (maximum : 1 pages) B.2.1 Objectifs et perspectives stratégiques de développement i
B.3 Activités et produits de la recherche B.3.1 Liste des membres en 2016-2017 (rapport extrait du registre) B.3.2 Liste des étudiants (cycles supérieurs et postdoctoraux) en 2016-2017 (rapport extrait du registre) B.3.3 Liste des étudiants diplômés au cours des 4 dernières années (incluant les postdoctoraux) (rapport extrait du registre) B.3.4 a) Liste des publications des membres réguliers (liste produite par le centre) b) Liste des rapports et mémoires des membres réguliers (liste produite par le centre) B.3.5 Liste des brevets (demandés et accordés) et transferts technologiques des membres réguliers (liste produite par le centre) B.3.6 Rayonnement national et international des membres réguliers (liste produite par le centre) B.3.7 Tableau des activités de recherches cliniques (liste produite par le centre) L’utilisation du genre masculin a été adoptée afin de faciliter la lecture et n’a aucune intention discriminatoire. Révisé 18 mai 2016 ii
GLOSSARY AGE-WELL-NCE Aging Gracefully across Environments using Technology to Support Wellness, Engagement and Long Life-Networks of Centres of Excellence of Canada ACFAS Association francophone pour le savoir APIC Accompagnement personnalisé en intégration dans la communauté AQIPA Association québécoise des intervenants auprès des personnes amputées ASD Autism spectrum disorder BoD Board of Directors CCRF Canada Chiropractic Research Foundation CCSMTL Centre intégré universitaire de santé et de services sociaux du Centre-Sud-de-l’Île-de-Montréal CEFRIO Centre Francophone d’Informatisation des Organisations CENTICH Centre d’Expertise National des Technologies de l’Information et des Communications pour l’autonomie CFI Canada Foundation for Innovation CIHR Canadian Institutes for Health Research CIRRIS Centre interdisciplinaire de recherche en réadaptation et intégration sociale CISSS Centre intégré de santé et de services sociaux CIUSSS Centre intégré universitaire de santé et de services sociaux CIUSSS-CODIM Centre intégré universitaire de santé et de services sociaux du Centre-Ouest-de-l’Île-de-Montréal CLRC Constance-Lethbridge Rehabilitation Centre CNS Central nervous system CoP Community of practice COR Comité d’orientation de la recherche CP Cerebral Palsy CR Centre interdisciplinaire de recherche en réadaptation et intégration sociale de Québec CRC Clinical Research Coordinator CREW Canadian Rehabilitation Ethics Workshop CRIR Centre de recherche interdisciplinaire en réadaptation du Montréal métropolitain CRLB Centre de réadaptation Lucie-Bruneau CVA Cerebrovascular accident Engage NSERC Engage Grants program ENoLL European Network of Living Labs ETMI Évaluation des technologies et modes d’intervention ETMIR Évaluation de la technologie et modes d’intervention en réadaptation FIM Functional independence measure FRQ Fonds de recherche du Québec FRQNT Fonds de recherche du Québec – Nature et technologies FRQS Fonds de recherche du Québec – Santé FRQSC Fonds de recherche du Québec – Société et culture FTE Full time equivalent GIRR Groupe interdisciplinaire de recherche sur la résilience GRSNC Groupe de recherche sur le système nerveux central ICF International Classification of Functioning Disability and Health ID Intellectual disability ID-ASD Intellectual disability-Autism spectrum disorder IMC15 International Mobility Conference INLB Institut Nazareth et Louis-Braille INSPIRE Initiative for the development of new technologies and practices in rehabilitation INTER Ingénierie de technologies interactives en réadaptation IRD Institut Raymond-Dewar IRGLM Institut de réadaptation Gingras-Lindsay-de-Montréal IRSST Institut de recherche Robert-Sauvé en santé et en sécurité du travail ISPGR International Society of Posture and Gait Research IURDPM Institut universitaire sur la réadaptation en déficience physique de Montréal JRH Jewish Rehabilitation Hospital KT Knowledge transfer KT-SIRQ Knowledge Translation Strategic Initiative in Rehabilitation in Québec MMRC MAB-Mackay Rehabilitation Centre McGill McGill University MEDTEQ Québec consortium for research and innovation in medical technologies iii
MPAI-4 Mayo-Portland Adaptability Inventory MSSS Ministère de la Santé et des Services sociaux NER 21 Neuro-Environmental Rehabilitation 21st century NSERC National Sciences and Engineering Research Council of Canada OPHQ Office des personnes handicapées du Québec PD Physical Disability PIMO Promotion intervention in the open PUR Pôle universitaire en réadaptation REB Research Ethics Board REDCap Research Electronic Data Capture RehabMaLL Rehabilitation Living Lab in the mall REPAR Réseau provincial de recherche en adaptation-réadaptation RIUPS Réseau infirmier, un partenaire de soins SAAQ Société de l’assurance automobile du Québec SAGE Specialist in the Application and Generalization of Expertise SCI Spinal cord injury SMAF Système de mesure de l’autonomie fonctionnelle SMRRT SensoriMotor Rehabilitation Research Team SPOR Strategy for Patient-Oriented Research SSHRC Social Sciences and Humanities Research Council TBI Traumatic brain injury TDCS Transcranial direct current stimulation TMS Transcranial magnetic stimulation UI University institute UdeM Université de Montréal UETMI Unité d'évaluation des technologies et des modes d'intervention UQAM Université du Québec à Montréal UQTR Université du Québec à Trois-Rivières iv
SECTION A THE CENTRE ITS MISSION, CHARACTERISTICS, FUNCTIONING, OBJECTIVES AND DEVELOPMENT OPPORTUNITIES 6
SECTION A.1 A.1.1 to A.1.5 The research centre (maximum: 5 pages) A.1.1 General presentation of the Centre The Centre for Interdisciplinary Research in Rehabilitation of Greater Montréal (CRIR) began its activities in April 2000. As it implements its fifth development plan (2017-2021) and, more particularly, after the passing of Bill 10 into law, CRIR remains a unique centre in Québec with an organization extending across multiple institutions and universities, namely the Centres intégrés universitaires de santé et de services sociaux (CIUSSS) and the Centres intégrés de santé et de services sociaux (CIUSSS). It boasts an interdisciplinary approach to scientific planning, and transdisciplinary and intersectoral research across the biomedical and psychosocial fields, for people of all ages and encompassing all physical disabilities (motor, auditory, visual, language and communication). In addition, since July 2015, CRIR has been the research centre for the Institut universitaire sur la réadaptation en déficience physique de Montréal (IURDPM) and its partners. CRIR is operated by the Pôle universitaire en réadaptation (PUR), which is an association of four CISSS/CIUSSS, comprising: the CIUSSS du Centre-Sud-de-l’Île-de-Montréal (CCSMTL), which is affiliated with the Université de Montréal (UdeM) and includes the Centre de réadaptation Lucie-Bruneau (CRLB), the Institut de réadaptation Gingras-Lindsay-de-Montréal (IRGLM) and the Institut Raymond-Dewar (IRD); the CIUSSS du Centre-Ouest-de-l’Île- de-Montréal (CIUSSS-CODIM), which is affiliated with McGill University and includes the Constance-Lethbridge Rehabilitation Centre (CLRC) and the MAB-Mackay Rehabilitation Centre (MMRC); the CISSS de Laval, which includes the Jewish Rehabilitation Hospital (JRH), which is affiliated with McGill University; the CISSS de Montérégie- Centre, which is affiliated with the UdeM and includes Institut Nazareth and Louis-Braille (INLB). Five of the facilities grouped together in the various CISSS/CIUSSS offer services to people living with a motor impairment (JRH, IRGLM, CLRC, MMRC and CRLB). In addition, INLB serves clients with a visual impairment and IRD those with a hearing impairment. INLB, IRD and JRH serve clients of all ages (young people, adults and the elderly). All of the facilities, with the exception of INLB, also offer speech and language services. CRIR also has two other CISSS partners: the CISSS des Laurentides and the CISSS de Lanaudière, which now include two physical rehabilitation centres. These two CISSS serve the four types of clients with a physical impairment (motor, auditory, visual, and speech and language) and people of all ages. The large majority of CRIR researchers are faculty members at UdeM, McGill University and Université du Québec à Montréal (UQAM). However, there are also CRIR researchers from other Québec universities, such as Concordia University, Université de Sherbrooke and Université du Québec à Trois-Rivières (UQTR), with whom we continue to work closely. Today CRIR is one of the largest rehabilitation research centres in Canada, with 80 regular researchers (average 58.5 FTE) supervising over 470 graduate students, and over 100 members (clinicians/healthcare professionals) from rehabilitation facilities who not only collaborate with researchers, but also carry out their own research projects. CRIR researchers and their teams occupy over 40 laboratories, covering nearly 44,000 square feet distributed across our various research sites and sharing common platforms, as described below . Among CRIR’s fundamental characteristics are, first and foremost, the excellence of its interdisciplinary and intersectoral research. This research is highly specific and clinically significant and advances the understanding of disabilities and the development, evaluation and implementation of innovative interventions and technologies, as well as activities for the transfer and mobilization of knowledge essential to evidence-based practice. CRIR’s mission is to optimize the functional capacity, performance, participation and social inclusion of people living with a physical impairment through research in the domains of biomedical and psychosocial rehabilitation. The expertise and diversity of our researchers, as well as their collaborative research activities, their success with funding agencies, productivity in terms of publications and knowledge transfer and mobilization, and, finally, their presence on the national and international stages, all contribute to CRIR’s visibility. Added to this are our partnerships in interdisciplinary, intersectoral and strategic development initiatives that have flourished since 2012. Finally, the effectiveness of our organizational structure and the collaborative and integrated research policy across CIUSSS and CISSS that transcends the complexity of the current situation following adoption of Bill 10, attest to CRIR’s success. Since 2012, CRIR has maintained two research axes, each with two thematic areas: Axis 1: Sensory, motor and cognitive functions and activities (Theme 1: Functional mechanisms; Theme 2: Physical and cognitive activities) and Axis 2: Participation, social inclusion and rehabilitation services (Theme 1: The personl, their entourage and the community and Theme 2: Services, systems and policies). The two research axes and thematic units cover all of the various components of the International Classification of Functioning, Disability and Health (ICF) concerning people of all ages with a physical impairment: organic functions and anatomical structures; activities and participation; environmental factors at the physical, individual or societal level. In addition, CRIR has three trans-axial priorities : 1) Knowledge mobilization; 2) Technological innovations; 3) Development, evaluation and implementation of innovative rehabilitation interventions. 7
SECTION A.1 page 2/5 With regard to common platforms, CRIR activities are supported by shared research staff and specialized resources (such as engineers and electronic, mechanical and computer technicians), allowing researchers to develop, on-site, the devices and software needed for their experiments. Each laboratory is identified in terms of the technology or type of study located there, and there is a researcher in charge. Although the specialized staff (engineers and technicians) are located in the laboratories of two institutions (JRH and IRGLM) and the UdeM and INLB School of Optometry, researchers at other sites also have access to their services. Each laboratory manager is responsible for prioritizing and managing access to specialized equipment by on-site researchers. For other researchers access is determined by equipment availability. The FRQS-FRQSC budget also funds research assistants for the psychosocial component and they are located at the five CRIR rehabilitation centres (JRH, CLRC, CRLB, IRD and INLB). In addition, a computer graphics technician offers help and advice on layout for presentations and communications, while statisticians and methodologists support experimental design development and data analysis. Each site has administrative staff and research assistants, funded jointly by the Centre’s infrastructure funds and by the clinical institutions and their foundations, to help students and researchers carry out their projects. Finally, each site is managed by a CRIR researcher who looks after research planning and inter-site collaboration. The clinical research coordinators (CRC) at each site play a leading role in the institution and ensure the links between healthcare professionals and researchers. Funded by the clinical settings, they work, in collaboration with the site manager, to ensure the smooth operation of the clinical research at their site, coordinate suitability evaluations and promote networking between researchers and clinical and management teams. The CRC round table ensures fluid communication regarding operational resources and strengthens the links between rehabilitation facilities. The CRC round table, created in June 2002, is a necessary cog in the CRIR wheel, because it allows the sharing of solutions to joint problems across different sites. Although the work of the round table had decreased during the period of adjustment imposed by Bill 10, since March 2015, its activities have gradually begun to pick up. Finally, the smooth functioning of the CRIR is ensured by head office staff: an administrative technician, a technical research assistant and an assistant to the scientific direction; in March 2014, a new coordinator position was created (today occupied by two people, making up one FTE) to enhance clinical research and develop partnerships promoting collaboration between researchers and various partners such as industry, the private and public sectors, clinical and teaching settings and community organizations. Given the large number of dossiers being managed each year, we propose adding one person to work with head office administrative staff (report writing, maintaining the website, etc.). A.1.2 The research centre’s strengths and challenges CRIR is a unique research centre. We are known for the excellence, scope and diversity of research in rehabilitation (conducted with a range of methodological approaches), as well as for our interdisciplinary, intersectoral and knowledge mobilization initiatives which have a major impact in the clinical and scientific domain and the public and community milieu. CRIR is also an outstanding hub of training the next generation of researchers and a model of partnership and administrative synergy. CRIR’s position in the IURDPM, which received its designation in July 2015, strengthens and concretizes the Centre as an environment of excellence and innovation in rehabilitation. It should also be noted that the designation of CCSMTL as IURDPM is a recognition of CRIR’s contribution, particularly with respect to the development of best practices in rehabilitation and, more specifically, in the social domain. Nevertheless, the adoption of Bill 10 has triggered a series of transformations in clinical settings, including mergers, relocations and staff changes, which have also affected the progress of research at all sites. In addition, new bodies require a significant learning curve in order to understand CRIR’s structure and operations. Fortunately, the new members of the Board and the research directors at CIUSSS and CISSS strongly believe in the importance of CRIR. So, collectively, we can overcome the challenges of the transformation of the network. The scientific direction, in collaboration with site managers, are maintaining their efforts to preserve and facilitate the extraordinary collaboration between CIUSSS and CISSS, who are committed to working in synergy to maintain CRIR and to promote and advance research in rehabilitation. Concerted efforts must also be made in the coming years to achieve CRIR’s objectives while bearing in mind the “obligations” relating to the university designation and its implementation. Without doubt, research in clinical settings remains one of CRIR’s greatest strengths. Since all research laboratories are located in clinical settings, proximity to the latter promotes exchanges between researchers, their students, healthcare professionals and managers, and facilitates the planning and execution of projects concerning clients at the various sites and carried out in collaboration with healthcare professionals. Proximity also enables researchers to keep an eye out for concerns related to client programs, such as the effectiveness of intervention methods or users’ progress after returning home. 8
SECTION A.1 page 3/5 Another of CRIR’s strengths lies in the scope of the research in physical impairment from childhood to old age. CRIR researchers are experts in over 15 disciplines (from interior design and anthropology to social services involving, in particular, physiotherapy, occupational therapy, speech therapy, epidemiology and psychology). Of particular importance will be to recruit researchers with the expertise in research topics dealing with an aging population with multiple disabilities and suffering from chronc diseases. Competitive recruitment funds will be required, as compared with other research centres. Therefore, in our new budget, we propose increasing the current amount of $30k to $40k per new researcher. CRIR’s greatest strength lies in its researchers and their students, as well as in their work in clinical, applied, interdisciplinary and intersectoral research. In addition, CRIR is known to be one of the rare locations where Living Lab expertise has been developed and efforts must be made to consolidate this expertise. Therefore, in our new budget, we propose to maintain the position of clinical research and partnership development coordinator to promote collaborative relationships between CRIR researchers and various partners such as industry, the private and public sector, clinical settings, community groups and universities. Solid partnerships are the cornerstone of the success of intersectoral research, in which CRIR participates. In addition, although the number of researchers has tripled since CRIR was created, the number of support staff has remained the same.Therefore, to achieve the objectives established by CRIR in this new reality, the addition of staff to the support team will be crucial for the benefit of members. A.1.3 Relations with the environment, collaboration Since CRIR’s creation, the institutions have been committed to promoting and strengthening research development within their settings. They have invested in ensuring the links between research and the clinical settings, either through funding support for clinical hours to free up time for clinicians to contribute to research projects or through funding clinicians’ special projects. Clinical research coordinator (CRC) positions and the round table of the nine CRCs (described above) are the key link between research and the clinical settings, acting as transmission corridors to allow the different components to work together. Over the last years, CRIR’s various clinical settings have also undertaken to promote evidence-based practices and implement best practices by increasing their efforts in the area of knowledge transfer and appropriation. In preparation for the final submission of the IURDPM designation, the clinical settings were equipped with specific committees, e.g. “Sharing and managing knowledge” and “Evaluation of technologies and methods of intervention (ÉTMI)”. While these committees are continuing their work, CRIR has also fully incorporated both knowledge mobilization and the evaluation and implementation of interventions and technologies. To fully ensure the success of these two entities, we have adopted them as trans-axial priorities with outcome measurements and indicators (see section A 3.1). CRIR’s success depends on its researchers and their students. All of CRIR’s researchers are university professors. The close relations between CRIR and the universities can be seen on several levels. The Centre’s research program planning is aligned and integrated with that of its partner universities, which are also stakeholders in PUR’s Board of Directors. In addition, the scientific direction acts in coordination with faculties, departments and programs with regard to recruiting and hiring new researchers, as well as ensuring that they are supervised (mentoring program) and successful (laboratories, infrastructure and funds). CRIR also benefits from the sound collaboration between partner universities and their commitment to promoting research in rehabilitation. In particular, this is shown by major joint grant applications (e.g. CFI, BRILLIANT-Rehab: McGill and UdeM). There are also close relations between CRIR and the Réseau provincial de recherche en adaptation-réadaptation (REPAR), as well as with the Centre interdisciplinaire de recherche en réadaptation and intégration sociale de Québec (CIRRIS). All CRIR researchers are members of REPAR and participate at the committee level and in REPAR’s strategic clusters and initiatives. A striking example of fruitful collaboration between the two research centres and REPAR is the joint work around the theme “Inclusive Society”, resulting in the joint submission to FRQS with the FRQNT INTER strategic cluster of a funding application for an intersectoral initiative with the title: “Towards a more inclusive society in Québec”. This funding application and the collaborative work took the CRIR RehabMaLL project to another level, extending to other environments and beyond Greater Montréal. Many CRIR researchers are also members of the INTER cluster. This collaboration offers our researchers new avenues of research and collaboration with regard to rehabilitation technologies. Lastly, the transformations brought about by Bill 10 have opened up avenues for cooperation between CRIR and the other research centres within CIUSSS and PUR CISSS. This new collaboration has begun with joint research days and can only grow in the coming years. A.1.4 Research spinoffs, nationally and internationally In the last five years, the exchanges and collaboration by CRIR researchers at the provincial, national and international levels have flourished and generated major spinoffs in terms of new knowledge and outreach. With regard to activities that have had an impact on improved healthcare, various tools, such as intervention prototypes, clinical practice guides and clinical tools, have been developed. For example, Archambault and his colleagues developed a simulator for learning to drive a motorized wheelchair, leading to the development of training programs for users of this type of technical aid. This research has spread to Europe and New Zealand, leading to new collaborations and new products. 9
SECTION A.1 Page 4/5 In addition, the MOvIT-PLUS Internet portal developed by Auger provides telemonitoring and teletraining tools (automated telephone calls/text messages/e-mails/sensors) to monitor wheelchair users and, if necessary, alert rehabilitation professionals; this ensures follow-up of users of technical aids and their caregivers. Both projects are currently supported provincially by the Ministère de la Santé et des Services sociaux, nationally by the network of excellence AGE-WELL NCE and internationally through CENTICH (Centre d’expertise national des technologies d’information et des communications pour l’autonomie) in France. Shikako-Thomas and Majnemer have marketed an application (Jooay.com) for improving access to adapted community and leisure programs for children. The application is the outcome of a research project by a team including nine researchers from three Canadian provinces (BC, AB, QC) and seven collaborators from the community, in particular parents, specialized educators and representatives of the Office des personnes handicapées du Québec. Jooay has now notched up 1,050 activities in six provinces (BC, AB, SK, ON, QC, NS), and has 610 users. In addition, Australia, Brazil and the United States have shown an interest in implementing Jooay in their countries. Other researchers collaborating with clinicians and managers have contributed to 1) developing and evaluating promising practices, such as the Cirque social (Rochette), dance therapy (Swaine), piano therapy (Lamontagne), serious games in virtual reality (Fung et al.) and accompagnement-citoyen (Lefebvre, Levert); 2) implementing clinical tools in various traumatic brain injury (TBI) programs in Québec (McKerral; Mayo-Portland Adaptability Inventory), which allow proper documentation of post-TBI to better plan interventions; 3) developing a tool to evaluate the complexity of a speech rehabilitation dossier (Beauregard). In addition, in the framework of the national Candrive study, Mazer and Gélinas have developed a screening tool to assist clinicians to determine driving ability in senior drivers. This project has had a significant impact across Canada and is currently being extended to Australia. Swaine and collaborators have developed a clinical practice guideline to support the rehabilitation of adults who have suffered a moderate to severe TBI, with a recently launched website: https://braininjuryguidelines.org//. Other Internet sites or bilingual electronic platforms arising from the work of CRIR researchers, which disseminate or popularize information concerning the following subjects of interest, have also been developed: CVA Stroke Engine/Info CVA (Korner-Bitensky and Rochette); cerebral palsy, the CP-Engine, a free electronic information platform (Snider); hearing impairment: http://www.bruitsociete.ca, Bruit & Société—the first noise reference site in Québec; motor impairment: http://www.childhooddisability.ca. In addition, the Réseau infirmier un partenaire de soins (RIUPS, riups.org, Lefebvre, Levert) has helped optimize interdisciplinary practices in cancer rehabilitation, a CRIR innovation sector, and is currently pursuing its mission of knowledge mobilization, particularly internationally (France, Belgium). Finally, Ahmed has set up a patient health portal and an on-line tool to assist with self-management of respiratory diseases. This project is currently being extended to Brazil and to other populations with neurological conditions or chronic cardiovascular disease. In the last five years, researchers have obtained major grants that have an impact nationally and internationally (e.g. Majnemer, Strategy for Patient-Oriented Research (SPQR), $25M; Kehayia et al, SSHRC partnership, $2.5M; Boudrias, Brain Canada, $350k). In addition, in collaboration with the Fondation de l’Institut de réadaptation Gingras-Lindsay-de- Montréal (IRGLM), CRIR has contribued to the creation of the Lindsay Prize in Rehabilitation and Technology Innovations, worth $800k, enabling two CRIR researchers (Ahmed and Gagnon) to set up a joint rehabilitation research program called INSPIRE (Initiative for the development of new technologies and practices in rehabilitation). The results and deliverables of this research will have a significant impact on the programing of rehabilitation care and services. Finally, an initiative, funded by the FRQS program Projets de développement stratégique innovants (2011-2015, $1.4M) and based on a partnership between CRIR and Cominar (owner of the Alexis Nihon complex in Montréal), resulted in the creation of the first rehabilitation Living Lab in a shopping centre – the RehabMALL project (http://www.crir- livinglabvivant.com). With preferential access to this innovative research environment (inside a Montréal shopping centre), the CRIR researchers and their students, with local, national and international partners from the public, private and clinical sectors, have developed an expertise in the Living Lab approach, conducting over 70 research projects. These projects have led to the identification of the main physical or psychosocial obstacles to social participation and the inclusion of people living with a physical impairment in a shopping centre environment. Technologies, technical aids and training/services have been developed, implemented and evaluated to overcome the challenges of participation and social inclusion. Besides the project’s major impact for the creation of inclusive environments and the participation of people living with a physical disability, this research has had significant spillover effects in other public environments, such as museums (e.g. Musée de la Civilisation in Québec City) and libraries at the local and provincial levels, as well as in Europe. Furthermore, in April 2015, Cominar, the shopping centre owner, was awarded the building of the year award by BOMA Québec, the building owners and managers association, as well as an international prize for the changes made to the shopping centre in line with CRIR’s research activities. 10
SECTION A.1 Page 5/5 A.1.5 Replies to questions and follow-up of recommendations from the last inspection The evaluation committee awarded the Centre an excellent rating following its analysis of the documents submitted and its site evaluation. The committee raised seven points for future development and the Centre has adopted the following concrete steps in line with the recommendations. 1) Give greater consideration to assessing the relevance and effectiveness of therapeutic approaches and evaluation tools developed for clinical practice. Since 2012, CRIR researchers have been working closely with clinical settings to evaluate emerging/promising interventions. In addition, the scientific direction and researchers are taking part in the activities of the ETMIR unit which groups together all PUR members. Lastly, CRIR has developed a transaxial priority and the objective (#2) of promoting developing, evaluating and implementing innovative and technological rehabilitation interventions. We have also identified targets and performance indicators, which are already in place and which will be followed throughout the implementation of the new development plan. 2) Address the diversification of activities around the consolidation of interdisciplinary and intersectoral transaxial research. Since 2012, a wealth of interdisciplinary and intersectoral projects have been initiated (see section B of the document). In addition, major transaxial funding applications have been submitted or are in preparation. 3) Define more concretely the functioning of communities of practice (CoP). Three CoPs have been created and facilitated since 2012, using the platform of the Canadian Network for Public Health Intelligence. To ensure their continuity, funding applications are being prepared. We should also mention the involvement of CRIR researchers in organizing an ACFAS symposium (11 speakers) in May 2014, which focused on knowledge transfer in CoPs, as well as the submission of an article concerning the evaluation of the CoP (Mazer et al., 2015). 4) Enhance knowledge exchanges and integration in practice. CRIR has established a transaxial priority: knowledge mobilization and an objective with targets and performance indicators that will continually be monitored or followed up. The creation of the role of knowledge brokers within clinical settings, as well as the hire of a knowledge mobilization coordinator at CRIR (mentioned above), will reinforce the efforts already undertaken. In addition, a team funded by REPAR, under the leadership of Thomas and including six other CRIR researchers, experts in knowledge mobilization, is looking into this issue and establishing programs to assess the effectiveness of therapeutic approaches and evaluation tools and will consequently facilitate the development of this domain. Lastly, the Réseau infirmier, a care partner (cancer rehabilitation), is also thriving and pursuing its knowledge mobilization mission at the provincial level, with exposure nationally and internationally. 5) Increase student bursaries. CRIR managed to award modest bursaries to students between 2013-2016 (amount totalling $156,800), but these bursaries only partially cover their needs. 6) Number of postdoctoral fellows CRIR has awarded funds to recruit postdoctoral fellows in collaboration with researchers and universities, which has translated into an increase in their number. New avenues are being explored to fund fellows and ensure better integration with CRIR. 7) Concern for the succession for two scientific directors going forward Given the recent reform of the health network, as well as current demand, the Board has deemed it appropriate to renew the mandates of the current scientific directors. However, an action plan will be put in place to ensure future succession in the scientific direction. 11
SECTION A.2 A.2.3 Operationalizing the links between university partners, facilities and foundation(s) (maximum: 2 pages) The main pillars of CRIR are the universities and facilities that are members of CRIR, as well as the CIUSSS and CISSS that integrate these facilities. Since CRIR was established and until the present, universities and clinical settings have been working in synergy and coordination and this is visible at all levels. All PUR member facilities operating CRIR have an affiliation contract with one of the CRIR-affiliated universities. A research direction or vice-rectorate representative from each of the universities sits on PUR’s Board. Each university has also designated a representative to REB from CRIR institutions and recognizes the ethics certificates issued. All regular CRIR researchers hold the position of professor: UdeM (32), McGill University (33) or UQAM (5). In addition, 10 other researchers hold positions in other universities: Concordia University (4), Université de Sherbrooke (5) and Université du Québec à Trois-Rivières (1). For the academic year 2015-2016, CRIR researchers supervised over 470 graduate students at these universities. Over 70 of the students benefit from interdisciplinary co-supervision and, for 10 students, the co-supervision is international. The professors come from seven faculties: medicine, nursing, arts and sciences, human sciences, design/planning, education and engineering, as well as from 18 university departments. The universities ensure the salaries of all research professors. Particularly at the School of Rehabilitation (UdeM) and the School of Physiotherapy and Occupational Therapy (McGill University), from where the majority of our researchers come, CRIR’s scientific directors are involved in the recruitment of new researchers. Each new researcher is assigned a research mentor (i.e. by CRIR), as well as a university/academic mentor. CRIR also works closely with the universities in preparing the provincial or federal salary award applications submitted by our researchers. The universities administer the awards of the 15 CRIR research award recipients. There is also cooperation with regard to the nine research chairs and the university allocation for applications to the Canada Foundation for Innovation (Leaders Fund and Avant-Garde). Lastly, the universities contribute to scholarships offered by different departments or university programs. The faculty deans and department heads collaborate closely with the scientific direction of CRIR and CISSS/CIUSSS and their facilities to agree on support for recruiting new researchers and establishing their laboratories at research sites. This means that the appointment of every research professor must have the support of the university as well as of the host facility. This is also necessary for the renewal of researchers. For the next four years, the INLB of CISSS de Montérégie-Centre and its foundation, in partnership with CRIR, is planning on supporting the salary of a new researcher in the field of vision at the Centre. There is also close cooperation between CRIR and the clinical settings with regard to appointing and renewing CRIR clinicians/healthcare professionals. The scientific direction of CRIR will play an important role in recruiting two facility researchers in the framework of university institutes (UI). Finally, in light of the recent UI designation, CCSMTL will increase its contribution to university activities (see section D.2.B of CCSMTL). The CISSS/CIUSSS and their facilities receive indirect research costs from federal agencies divided on the basis of agreements between the universities and CRIR. Although part of these costs are allocated to the operation of CÉR and the administrative management of the FRQS Register, the amount returned to clinical settings is invested to ensure the smooth running of research at the sites. Since 2014, facilities have been receiving provincial indirect costs directly. Until April 2015, the universities were offering support for drawing up and validating contracts with industry or funding agencies (including intellectual property). After the adoption of Bill 10, supplementary assistance will come from CISSS/CIUSSS which will put in place common procedures for CISSS/CIUSSS facilities with regard to future contracts. With respect to research programming, CRIR cooperates as needed with the faculties and departments of affiliated universities, particularly at renewal periods. CRIR also participates in university planning with regard to 10-year plans and in university initiatives. CRIR plays an active role in various knowledge transfer activities organized by universities and contributes financially to inviting national or international speakers. CRIR research spaces/laboratories are located in CRIR member facilities, which also offer common spaces for research and students. Therefore there are very close links with the facilities/CISSS/CIUSSS responsible for their respective research sites. The facilities’ annual contribution to the smooth running of CRIR is $444,000 ($330,000 in kind and $104,000 in cash). The contribution in kind is reflected in the hire of one CRC (minimum 3 days/week) at each CISSS and CIUSSS member site, as well as in freeing up clinicians (about 500 hours per year per facility), which promotes their involvement in research activities. In addition, to face the major challenge of recruiting research participants in clinical settings, an application for additional resources for CISSS and CIUSSS members is underway. Since the creation of CRIR, the facilities and their foundations have contributed financially (about $1.3M per year) to promote the development of research activities at their respective research sites. The financial assistance is used to hire research and administrative staff at the sites, pay bonuses for site managers, enlarge and develop space and purchase equipment or fund special projects (e.g. RehabMaLL). The facilities and their foundations have also had a role as driver and support, motivating clinicians to go 12
SECTION A.2 A.2.3 Operationalizing the links between university partners, facility and foundation(s) (continued – page 2) back to school and then come back into clinics and strengthen evidence-based practice. In the past five years, foundations have also invested in funding projects from clinical settings. Although post-Bill 10 there have been mergers of facility foundations, the concerted efforts of CISSS/CIUSSS and the foundations are ensuring the commitment of all to the growth of rehabilitation research. Finally, via their intra-CISSS/CIUSSS information bulletins, they are contributing to the dissemination of research results and CRIR’s visibility. As far as large-scale applications are concerned, CRIR acts as a unifying force between the universities and the facilities. Therefore the three CISSS/CIUSS involved in application CFI (2017-2022) BRILLIANT-Rehab undertook to contribute $25k annually for five years to the activities proposed in the application. There are currently other similar but smaller commitments in partnership with CRIR and the universities (e.g. Brain Canada; SSHRC Partnership). With regard to the Lindsay Prize, awarded in 2014 for five years by IRGLM, the scientific direction of CRIR has contributed, together with the rehabilitation schools at McGill University and UdeM, to the selection/appointment of award winners, and also sits on the scientific committee overseeing the development of the award winners’ scientific program and follow-up of the results. 13
SECTION A.3 A.3.1 Objectives and strategic development perspectives (maximum: 2 pages) CRIR’s overall objective is to promote rehabilitation research excellence, thanks to the interdisciplinary and integrated biomedical and psychosocial aspects of rehabilitation issues, in order to meet the needs of people of all ages living with physical disabilities. Since its creation, the strategic planning of the CRIR development plan has been implemented through partnership and a tripartite synergy between the practical, research and academic environments. In the current context, the key actors, namely CIUSSS and CISSS, the universities and the various CRIR members, researchers, clinicians/healthcare professionals and students have participated in a series of consultations from which have emerged, thanks to a participatory and consensual approach, the development objectives and strategic orientations of the Centre. In line with our major achievements since 2000, the following objectives will enable us to further increase innovative research to respond to emerging priorities in the rehabilitation domain. 1. Increase interdisciplinary and intersectoral research within our two research axes. 2. Promote research on the development, evaluation and implementation of innovative rehabilitation interventions and technologies. 3. Strengthen knowledge mobilization and appropriation in synergy with knowledge users. 4. Encourage the creation of partnerships with the community and the public and private sectors. 5. Support training of the new generation of researchers. 6. Enhance CRIR’s visibility and national and international collaboration. 7. Contribute to the development of IURDPM. CRIR’s scientific direction is working in close collaboration with the CCSMTL’s Direction de l’enseignement et de la recherche universitaires with the objective of supporting the development of the IURDPM. Therefore CIUSSS working committees have been set up and are mobilizing researchers, clinicians and managers involved in university activities concerning physical disability rehabilitation. The work is particularly concerned with rolling out a support structure, which the CIUSSS must acquire in order to successfully carry out its MSSS mandate in the framework of the IU designation. In its pursuit of the above-mentioned objectives, CRIR is participating in setting up the IU, and particularly in developing the ETMIR unit, as well as cutting-edge practices and the recruitment of two CCSMTL facility researchers, which also constitutes added value for CRIR. 1st objective: Foster growth of interdisciplinary and intersectoral research in both our research axes 1.1 Targets: 1.1.1 Submit 2-3 large-scale applications. 1.1.2 Recruit researchers in specific domains and in CRIR development (e.g. anthropology and rehabilitation, sociology and rehabilitation). 1.2 Indicators: 1.2.1 Number of grants, publications, students and presentations. 1.2.2 Number of researchers recruited with expertise in target domains. 2nd objective: Promote research on the development, evaluation and implementation of innovative rehabilitation interventions and technologies. 2.1 Target: Submit 2-4 large-scale applications in line with innovative or technological interventions, including requests to collaborate with MEDTEQ. 2.2 Indicators: 2.2.1 Number of researchers recruited with expertise in relevant domains (e.g. economic evaluation). 2.2.2 Number of grants, publications, students and presentations in line with the objective. 2.2.3 Number of technological innovations; number of patents. 2.2.4 Type and number of incidences of members’ involvement in strategic activities and initiatives. 2.2.5 Number of research projects evaluating the impact on changes in practice. 2.2.6 Number of researchers involved in ETMI unit projects. 3rd objective: Strengthen knowledge mobilization and appropriation in synergy with knowledge users. 3.1 Target: 3.1.1 Increase by 10% per year the number of knowledge users (clinicians, patients, etc.) on funding applications. 3.1.2 Involve a patient, partner or representative of one of the communities of practice in CRIR bodies or activities. Increase knowledge transfer activities. 14
SECTION A.3 A.3.1 Objectives and strategic development perspectives (continued – page 2/2) 3.2 Indicators: 3.2.1 Knowledge users (number and nature) on funding applications. 3.2.2 Number of clinicians who are members of CRIR. 3.2.3 Number of hours of clinicians’ involvement (and value in kind); number of salary awards for clinicians from CISSS/CIUSSS facilities. 3.2.4 Activities (nature and number) of knowledge mobilization. 3.2.5 Number of visits to the CRIR website (and other statistics). 4th objective: Encourage the creation of partnerships with the community and the public and private sectors. 4.1 Targets: 4.1.1 Increase by 5% per year the number of partners with a formal agreement. 4.1.2 Increase the number of partnership awards (e.g. MiTACs). 4.2 Indicators: 4.2.1 Number and nature of agencies and partnerships. 4.2.2 Number of applications submitted and funded (e.g. MiTACS, Engage). 5th objective: Support the training of the next generation of researchers. 5.1 Targets: 5.1.1 Increase the number of post-doctoral and graduate students, and the number of award-holders from recognized bodies. 5.1.2 Increase the number of training workshops for students and clinicians. 5.2 Indicators: 5.2.1 Number of post-doctoral students; number of award-holders from recognized bodies. 5.2.2 Number and nature of various training workshops (e.g. grant applications, statistical analyses, etc.). 6th objective: Increase the visibility of CRIR and of national and international collaboration. 6.1 Targets: 6.1.1 Increase the number of national and international funding applications in which CRIR researchers are either the principal investigators or the principal co-investigators. 6.1.2 Increase the number of co-supervised students nationally or internationally. 6.2 Indicators: 6.2.1 Number of funding applications nationally and internationally. 6.2.2 Number of co-supervised students. 6.2.3 Number of formal agreements with the private, public and community environments, both nationally and internationally. 6.2.4 Level of members’ involvement in organizing international conferences and strategic clusters like INTER, as well as in sitting on the editorial boards of scientific journals. 6.2.5 Increase by 10% visits to the CRIR website. 7th objective: Contribute to the development of IURDPM 7.1 Targets: 7.1.1 Set up the rehabilitation intervention evaluation unit (ETMIR). 7.1.2 Implement cutting-edge practices. 7.1.3 Recruit and install two facility researchers at CCSMTL sites. 7.2 Process indicators: 7.2.1 Number of researchers with expertise in the given problem (technology or target intervention) and who support the teams of clinicians and managers in performing unit work (i.e. methodological support). 7.2.2 Number of researchers with expertise in line with the interventions considered to be emerging or innovative and who support the clinical teams during the process of developing a cutting-edge practice, starting with evaluating the intervention and going right up to establishing and implementing the practice, even transferring it to other bodies if deemed relevant. 7.2.3 Number of researchers (CRIR members) recruited. 15
SECTION A.4 Scientific productivity of the centre A.4.1 Summary of the key components of performance (maximum: 1 page) The key components of performance for CRIR are found as much in the achievements of each of our researchers and their students as in our collective achievements at the scientific, academic, clinical and societal levels. These achievements are highlighted by traditional performance indicators, i.e. by the number of publications, grants, fellowships and research chairs (CRR) (n=8: CIHR-IRSST; NSERC-Essilor; CIHR; Canada Research Chair (CRC) the William Dawson Scholar award (McGill) and in Childhood Disability; the CCRF Chair in Rehabilitation Epidemiology; CRC on identities and professional innovations in cognitive disabilities and pervasive developmental disorders). Various honorary awards made to CRIR researchers (REPAR, 2016; the Lindsay Prize, 2015; the Enid Graham Memorial Lecture award, 2015; the Muriel Driver Memorial Lectureship award, 2016; the Dr. Jane Gillett Research Award, Brain Injury Association of Canada, 2016; the Rosemary Wedderburn Brown Faculty Prize, 2016) also contributed to raising the profile of the Centre. Thanks to our researchers’ acknowledged specialized expertise, they are invited to direct and participate in provincial and inter-provincial initiatives (e.g. REPAR’s strategic clusters), as well as Canadian initiatives (e.g. National Brain Injury Research Agenda, Canadian Stroke Network, SSHRC Partnership and CHILD-Bright (SPQR)). Numerous collaborations, both national (e.g. AGE-WELL) and international (in Europe, the United States, Israel, Japan and Australia), attest to the expertise of our researchers. The RehabMaLL project has also allowed many of our researchers to distinguish themselves both nationally and internationally, for example in evaluating technologies or interventions in the living environment. Collectively, over the last five years, the regular researchers (with their students and partners) have published over 1,145 articles in high-impact, peer-reviewed journals (not to mention 86 articles currently in press). This represents a net increase since the last development plan of an average of 230 articles per year, compared with 150 articles per year previously. In addition, they published 53 scientific reports and 176 books/book chapters. With respect to awards (grants and fellowships) from agencies recognized by FRQS, they managed to maintain an average of $6.6M per year. In the year 2016-2017 (ending June 30, 2017) this average has already been surpassed and the year will, without any doubt, prove to be exceptional. From the academic standpoint, all researchers hold positions as professors and are therefore actively involved in the teaching mission. This dual function of professor-researcher is a key factor in our success in generating immediate knowledge transfer to future healthcare professionals, as well as facilitating evidence-based clinical practice. Since 2012, CRIR researchers have received awards for teaching and excellence from their universities (Prix d’excellence en enseignement du vice-rectorat pour l’innovation, UdeM; Médaille de carrière, Faculty of Medicine, UdeM; Hugh & Helen McPherson Memorial Award and the Medicine Alumni Global Awards, McGill University). Given the importance that our Centre places on clinical research and knowledge mobilization within rehabilitation clinical settings, we are proud of the growing number of clinicians and healthcare professionals involved in research (n= > 100). We should also emphasize the growing number of tools/interventions that have been developed, evaluated and implemented in clinical settings with health professional members. This is a research-clinical link that is crucial to evidence-based practices. Aside from the individual achievements of our researchers, we should also point out the Centre’s collective initiatives. For example, the RehabMALL project generated unprecedented interdisciplinary and intersectoral research activities producing scientific, clinical and societal benefits. These activities, which led to new grant applications, presentations and publications (including a special number in the European journal Alter), make CRIR a leader in the domain of the participation and social inclusion of people living with functional physical limitations. Based on the success of this unifying project, CRIR is today recognized for its Living Lab expertise and is one of four leaders of an intersectoral initiative submitted to FRQS aimed at creating a more inclusive society in Québec. Lastly, this new Living Lab expertise and rehabilitation in the community is at the heart of our CFI application (BRILLIANT-Rehab), which will have a major impact on clinical decision-making and rehabilitation interventions for people who have suffered an CVA or TBI, as well as for children with cerebral palsy (CP). While the traditional and most widespread means of scientific dissemination are the publication of articles in recognized scientific journals and giving presentations at conferences, many other innovative strategies of knowledge transfer and exchange (KT) are an integral part of CRIR’s activities. 16
Vous pouvez aussi lire